Tag Archives: MRKH

The ‘Markings’ of a Good Life

My land legs are a bit wobbly as of late- and when I say land, I mean life and when I say wobbly, I mean vulnerable. I am essentially feeling vulnerable in life. When you have committed to exploring one’s … Continue reading

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Kristen X2 Shares Their First Experience Attending a BYMRKH Meeting in Seattle!

   Hi my name is Kristen. I’m 33 years old and at 16 I was “undiagnosed” with MRKH because they didn’t have the information on it that they do today. I was told I was one in a million, and I suffered … Continue reading

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Keeping Secrets

I was 16 when I was diagnosed with MRKH, already struggling to dig out my niche in the world. The doctor explained to me I was born without a uterus and vagina, would require either dilation or reconstructive surgery to … Continue reading

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I am Tired of Hiding

While I imagine that most will continue past this post, I hope you’ll stop and read it. It contains brutal honesty and personal info; be prepared for a giant case of TMI. Most guys will probably want to scroll past, … Continue reading

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MRKH Supporter Runs Half Marathon to Raise Money and Awareness for the MRKH Community

     Long time MRKH Supporter, Cory Bettis is using her first half-marathon to raise money and awareness for the MRKH community by donating all of the funds she raises to the Beautiful You MRKH Foundation! This amazing and selfless … Continue reading

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Stay Strong, Stay Positive and Stay Kind

Let me tell you about my life. I am one of very few unique women to be born with a rare condition. The clinical term is Mayer-Rokitansky-Küster-Hauser syndrome but since no one can pronounce that, we call it MRKH. To … Continue reading

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The Power of ‘Coming Out’

My name is Mell, I am an 18 year old living in Australia with MRKH syndrome and this is my MRKH story. My journey with MRKH syndrome started just over 2 years ago now when I turned 16. I remember … Continue reading

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Never. Ever. Settle.

“Ally, where have you been?” This is what I said to myself last night on the bus ride home. As I continued to ‘IPhone swipe’ between my inbox and Facebook every 20-30 seconds on the humid and cramped 381, I … Continue reading

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Celebrating 11 Years Of My MRKH Diagnosis

It’s midnight and sure enough, Rosie wakes up. She needs a diaper change and a bottle, followed by some cuddles and then it’s back to sleep. From then until around 6:30 AM, we may wake up once or twice…or possibly … Continue reading

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MRKH Monday: Give Back with Giving Tuesday! #MRKHmonday #GivingTuesday

Here is your weekly MRKH news recap. Tomorrow is Giving Tuesday! Giving Tuesday is a global day dedicated to giving back! On Tuesday, December 2, 2014, charities, families, businesses, community centers, and students around the world will come together for one common … Continue reading

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