A Story of an Afghan Girl with MRKH Syndrome


My name is Frishta. I am 26years old and I live in Afghanistan. At birth, the doctors told my mother that your daughter was malnourished. However, I grew up and survived. When I was 19 years old, I was still not menstruating. My older sister took me to the doctor after the doctor’s ultrasound examination. I said I probably do not have a uterus or it may be too small. I was in my first year of law school at the time. When the doctor told me about this, I was very upset and knew I could not become a mother and have a child in the future. But because the cost of MRI examinations in Afghanistan was very high, my sister refused to do my examinations. At that time, I did not pay much attention to this issue and it did not matter much to me because I was mostly busy with my university courses at that time. I turned 26 and took university courses I finished and was able to work for two years, I decided to look for a partner for myself, but one thing bothered me from the inside, it was the same lack of menstruation from the time I reached puberty until now, I decided again I went to see a gynecologist. After the ultrasound examination, he told me that I did not have a uterus or that it was probably too small. I was shocked, my blood pressure was very low, my head was dizzy, but the doctor told me regardless of my mental state: you can not become a mother in the future and have a child, and the possibility that your vagina may be closed, you can not even marry and have sex with someone I was very upset and sad. I was very disappointed with my life.

Finally, I decided to go to the hospital with more facilities. But the doctor told me that you are a girl who has never been married and you are a virgin. That you are a single girl, we do not have the right to examine your vagina because I have never been married and I have not had sex with a man and I still do not know what my vagina is like and how long it is. I have to tell you that in Afghanistan, before marriage, a girl must be a virgin, that is, she must have a hymen, if she does not, in Afghan customs, this means that she is a mischievous and prostitute girl and had an illicit relationship with a person before marriage. Doctors in Afghanistan do not know about mrkh syndrome. They wrote to me in the mri examination sheet that I do not have a uterus, but I myself did a lot of research on the absence of menstruation and lack of uterus on the Internet and I knew I had mrkh syndrome because doctors in Afghanistan is not familiar with the name of this syndrome and they do not have information, I now live in a vacuum I can not I’m not able to have sex with anyone. This bothers me a lot and there are no facilities for vaginal surgery in Afghanistan. I am very depressed and worried about my future. I do not know this for me It has grown like a secret and it bothers me that I live in a traditional and religious society with strict customs and traditions against women .

This entry was posted in acceptance, afghanistan, awareness, diversity, half marathon, healing, hope, infertility, journey, MRKH, sisterhood and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink.

1 Response to A Story of an Afghan Girl with MRKH Syndrome

  1. Frishta, thank you for sharing your story.
    Are you able to work and practice law? In your culture is it acceptable to use dilation to achieve an acceptable vaginal length ( I am assuming that surgery is out of the question if nobody knows about MRKH)? Is leaving Afghanistan something you would want to do if it were possible? Does having this condition in a country that provides you with no options for treatment make you eligible for a visa to another country on humanitarian grounds? I hope these are not offensive questions.

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