Category Archives: Uncategorized

MRKH, THE GHOST OF MY LIFE

➢ My name is Julian Peter a Kenyan and at the age of 17 I visited the doctor for a checkup since I had aching feet and so the normal questions during consultation started. When was your last period? And … Continue reading

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Common Ground: An interview with Kimberly Zieselman, author of XOXY

It’s kind of amazing how we might surprise ourselves by doing something we wouldn’t usually do right now. We are quarantined and stuck wherever we are stuck. We are navigating a worldwide pandemic with contradictory approaches. We are doing our … Continue reading

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My Vagina is on Vacation

Four years ago, when my college put on a performance of the Vagina Monologues, I saw it as an opportunity to finally share something that I had kept inside me for several years—my MRKH diagnosis. With permission of the director, … Continue reading

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A Passion for MRKH and Genetics– A Guest Blog by Morten Herlin

Hi MRKH Community. I asked Morten Herlin to talk to you about his recent paper that examined long-term outcomes from various procedures used to create a vaginal canal. After a few missed Facebook phone calls, we ended up communicating via … Continue reading

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Your heart is worth the time. You are worth the time.

There is a Japanese art called Kintsugi. Kintsugi is the art of repairing broken pottery with gold dusted lacquer to repair it.  The philosophy behind it is to treat the breakage and show it as part of the history of … Continue reading

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Dear My Beauty

It’s not fair nor unfair. It’s not be pitied nor disregarded and it is the invisible grief that most will never talk about. The inner dialogue for infertility is that of subtle sadness, disguised aggression and palpable fear. Whether you … Continue reading

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A Glimpse Into the Fostering Process

You know those rare situations when you meet a beautiful couple whose love for one another fills the room, they are tons of fun to be around and you can just tell they are good people? Well, Sara and Stuart, … Continue reading

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The Age of Infertility

                                 As you get older, conditions get harder and everything changes. When you’re young, no one really tells you what adversities are ahead or how … Continue reading

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Q & A with Jaclyn and Jon

Jaclyn Schultz isn’t new to the spotlight (nor is Jon) or the interviews the follow. Now she is turning the tables and interviewing her fiancé and longtime MRKH supporter, Jon Misch. Jon will be presenting at MRKH Day on April 11, 2015 … Continue reading

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Stay Strong, Stay Positive and Stay Kind

Let me tell you about my life. I am one of very few unique women to be born with a rare condition. The clinical term is Mayer-Rokitansky-Küster-Hauser syndrome but since no one can pronounce that, we call it MRKH. To … Continue reading

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