I am thrilled to highlight and re-share this published work by my personal hero and the person who pioneered the MRKH community, Esther Leidolf. Reading Esther’s published work, “The Missing Vagina Monologue and Beyond” transformed my life and I encourage everyone to stop what they are doing and read it. I vividly remember reading this for the first time over 10 years ago sitting alone in my small apartment and soaking up every single word. Esther got it. Esther wasn’t afraid to say what many of us have felt and experienced, but may not be comfortable verbalizing. I printed out copies and gave them to my friends (males included) to give them a snapshot of the challenges I and others have faced due to MRKH. This article gave me the courage and the passion to say this condition can no longer stay in the dark and we need to start connecting and chip away at the shame and isolation. Esther’s work also started the conversation about the necessity of improved care, taking our own bodies back and reducing the stigma and shame associated to MRKH.

Below is an except from “The Missing Vagina Monologue and Beyond.” Click below to read this fantastic and insightful published article.

“Questions have haunted me for too many years because I couldn’t find the words. Knowing other MRKH women has finally allowed me a voice. But I don’t want it to stop there. My condition seems extreme only because it’s unheard of. Many of the women I surveyed want MRKH to become more public. The hope of opening the door to our secret lives in most of us. We exist in a conundrum because our knowledge is powerful but hidden in embarrassment and shame. The approach to our treatment is very extreme but effects all women in subtler ways. Advances in medicine offer men Viagra, but women still get the knife. Scar tissue does not enhance sexual pleasure.”

The Missing Vagina Monologue and Beyond